Friday, December 19, 2008

2nd Ear Activation

Here's the video that my husband took of me and the audiologist getting my 2nd cochlear implant activated on Wednesday, the 17th. These are the first minutes that my left ear had any sound stimulation in 8 months. It helped me to realize how far my 1st implant has come, even though I'm still working on it to feel like sounds and music are how I remember; they aren't yet, but it's only been 2 months on that side. When the 2nd ear was turned on here, sounds went back to being "tinny" and "chirpy".

I returned the next day and had my levels adjusted again on that ear and left the office feeling more balanced in both ears, like they weren't competing for my best attention. Now, I can enjoy Christmas vacation in Florida with family and participate in all of the activities, except swimming in the ocean...I have to take the speech processors off to swim, or shower or sleep.

The audiologist asked me if the sounds felt weird; some new CI users FEEL the sound more than HEAR it at first. I said that this whole thing was weird; here I am plugged into a computer, listening to digital beeps and trying to make them even in volume. YES, this is weird; I just want my normal hearing back! But I realize that that is no longer an option for me, so I am very grateful for this technology that gave me my life back and my joy, and I'll work and make the best of it for the rest of my life.

I'm also grateful to my employer/mission organization, WorldVenture, for funding all of this expensive rehabilitation for me. With many people having little or no health insurance, I realize how blessed I am to be "covered" by this great group. I'm also grateful to my Lord for giving me little personal and spiritual encouragements along the way, during this difficult time of deafness. He has brought people across my path bringing gifts of smiles and hugs, or prayer support, or even monetary gifts to help with our side of the expenses. He has also encouraged my heart with verses of Scripture at just the right moment to prove that He is a living and active God and cares about me, personally.

Thanks, too, to my ever-patient family and friends, my surgeon and audiologists, and HearingJourney.com who have supported my progress in many different ways. I feel like a success story in progress, and it's certainly not my own doing.

Monday, December 15, 2008

Seward family Christmas silliness

Send your own ElfYourself eCards

Hearing Progress and Getting Ready for 2nd Ear Activation

It's surprising how fast time flies, especially at holiday time when there are extra meals to prepare, gifts to buy, and errands to run. I haven't posted a blog now for weeks, but as I look forward to my 2nd activation on Wednesday, I'm thinking about the progress I've made in returning to the hearing world.


I still don't jump to answer the phone; maybe I'm just lazy, but sometimes it's still hard to understand the person on the other end of the line. There are many people who call our house, though, that I can understand and enjoy a conversation with, with only the occasional request for a repeat. That's a wonderful step ahead.


On Friday, I was the "guest lecturer" at my 3rd grader's classroom to talk for about 40 minutes on hearing and hearing loss, and cochlear implants, as part of their Science unit on sound. Did I "wow" 23 students with my technical knowledge and expertise, or was it just at the end when I stuck a spoon to the side of my head? In any case, I don't think I embarrassed my son too much, so all-in-all it felt like a successful event.


Yesterday at church, I worked both services in the baby nursery as part of a monthly rotation when I can get my "baby fix" on a regular basis. But I also worked last night for the Christmas program and played with talking toddlers. This was a step forward since normally babies just need rocking or bottles, but toddlers like interaction and vocabulary building. So, little Justin and Jeremy and I played with airplanes and Pooh Bears and my hearing impairment wasn't a problem with my cochlear implant working for me.


I've been working on my music appreciation by listening to Christmas music on my MP3 player, both orchestral and multi-layered music and with simpler acoustic arrangements that make it easier to hear and understand the pitches and lyrics. I've still got a ways to go before music sounds like what I remember, but my brain must be making adjustments again because my clarity is starting to get "mushy" and I can tell that I need a new mapping in my 1st speech processor. So, I'm glad that I'm already scheduled this week at the audiologist's office for my 2nd processor activation so I can get them both tweaked before Christmas vacation.


By the way, my daughter who is away at boarding school in Senegal, is coming home for Christmas on Thursday. I haven't had a face-to-face conversation with her since I got my implants, so I'm so excited to sit down and get caught up. We chat and email each other on-line, but I haven't had a real talk with her since before I went deaf in April. We're going down to Florida for most of the vacation to spend time with our families down there, siblings, cousins, grandparents, whom we've haven't seen in years, in some cases. It should be a nice time together and I'm so glad I'll be able to participate in it all!