Two Weeks of Meetings at HQ

After two weeks of meetings in Denver, Tom and I are back home and settled into our routine again. The meetings were a kind of real-life test of hearing effectiveness for me. Some of the meetings were held in a mid-size conference room with about 20 people around a U-shaped table arrangement. Generally only one person was speaking at a time and I could see them and follow well. Just like in noisy restaurants, when lots of people are talking at the same time, it's harder to "zero in" on the conversation in which I'm taking part. But overall, I was encouraged that I could participate in the discussions and even catch most of the jokes. There was one participant who had a ready, loud, distinctive laugh who drowned out some of the jokes when she sat beside me, but I just laughed along anyway!

The second week, we were moved to a big hotel where the conference room held 100-150 people around 10-chair tables. When we were listening to a speaker or musician, I caught most of that as well, because the sound came out of speakers aimed at the audience and my T-mic microphones picked it up well. When we had big-group prayer times where various people around the room prayed, I could hear very little of that because of the distance and lack of amplification, and because people often pray quieter and with their heads bowed. I took comfort in the fact that other people struggled to hear as well.

The worst listening scenario was during the Recognition Luncheon when we were in a big ballroom where the program was piped out of speakers in the ceiling. There was no direction to the sound; it just got lost all over the room. With the clanking of silverware and glasses and the squirmy children and servers doing their thing, I could understand next to nothing from the podium. I was near the back of the room as well, so my visual cues were limited. I did catch when they called our name to go forward for recognition for our years of service with the mission. I felt that many people who knew of my situation this past year were cheering a little extra, glad to see me back in the game.

By the time we left to come back home, I felt reinvigorated by the fun relationship time we had and the spiritual renewal times. I was charged up with ideas for follow-up on areas of ministry both here while we're Stateside and for our work back in Mali. But most of all, I felt like I functioned nearly normally and that my gifts and availability for service are still needed and useful. Tom and I need to gear-up now for our return to Africa at the end of the school year.

We need to start looking at buying our plane tickets, sorting and packing our things stored here at my mom's house, continue our speaking engagements and efforts to discover the rest of our needed monthly financial support, and work on all the other details of finishing the school year, and getting my speech processors ready for a year overseas. I need to set up a meeting with my surgeon, my main audiologist and me to strategize how to best arrange my programs for maximum effect while keeping third world challenges in consideration.

New mappings, new results, shows progress!

We had a busy Christmas holiday, travelling to Florida to see family and getting in a little fun on the side, too.

Last week, I had my third mapping on my new implant which gave me the Hi-Res 120 quality programming, which is more than just the volume increases we were going for initially when getting that ear to "wake up". The Hi-Res 120 gives better sound quality, and as my brain adjusts to these impulses, I can expect to hear more nuances of voices and music. My daughter, Hilary, went with me to the audiologist's office for that mapping and found he whole process interesting. She saw the audiologist working with the computer and the programs to give me the best sound, but also doing some creative problem-solving to help rehab my hearing. Hilary thought it might be a good career consideration, except that it's a bit more science-oriented than she's been gearing up for.

I had another mapping yesterday; this time it was my 3-month mapping for my first ear and my 1-month mapping for my 2nd ear. But before we sat down at the computer, the audiologist took me to the sound booth to test how I was doing with my first implant. My mother-in-law came with me this time and sat in the booth while I listened for the quietest possible sound I could hear, and got in the normal range for that test. Also, I repeated sentences that I heard over the speaker with no visual cues, and I got 98% right! After that, I repeated random isolated words and got 20 out of 25 right. The audiologist was so pleased with my results, and so was I, of course.

Now, I'm getting ready to travel to our mission's headquarters with my hubby for two weeks of meetings and training. This will be a kind of test for me on a new level to see how I can integrate back into my functioning world, outside of my home or church environment where I am comfortable. We will be in small groups, big meeting rooms, workshops, and travelling on the train (just for a new adventure!). I am planning on bringing a few of my "toys", like my mini-FM system in case I need a little help in the big meeting room hearing the speakers or music. I anticipate that air conditioning fans and chairs moving around and other distracting sounds might be a problem in hearing a speaker, so this system might be a real help. I also have a mini-microphone for talking one-on-one in noisy situations, which might help me, too.

All-in-all I feel encouraged by my progress and can see that I'm improving in my ability to function as a normal hearing person (with a little help!).

2nd Ear Activation

Here's the video that my husband took of me and the audiologist getting my 2nd cochlear implant activated on Wednesday, the 17th. These are the first minutes that my left ear had any sound stimulation in 8 months. It helped me to realize how far my 1st implant has come, even though I'm still working on it to feel like sounds and music are how I remember; they aren't yet, but it's only been 2 months on that side. When the 2nd ear was turned on here, sounds went back to being "tinny" and "chirpy".

I returned the next day and had my levels adjusted again on that ear and left the office feeling more balanced in both ears, like they weren't competing for my best attention. Now, I can enjoy Christmas vacation in Florida with family and participate in all of the activities, except swimming in the ocean...I have to take the speech processors off to swim, or shower or sleep.

The audiologist asked me if the sounds felt weird; some new CI users FEEL the sound more than HEAR it at first. I said that this whole thing was weird; here I am plugged into a computer, listening to digital beeps and trying to make them even in volume. YES, this is weird; I just want my normal hearing back! But I realize that that is no longer an option for me, so I am very grateful for this technology that gave me my life back and my joy, and I'll work and make the best of it for the rest of my life.

I'm also grateful to my employer/mission organization, WorldVenture, for funding all of this expensive rehabilitation for me. With many people having little or no health insurance, I realize how blessed I am to be "covered" by this great group. I'm also grateful to my Lord for giving me little personal and spiritual encouragements along the way, during this difficult time of deafness. He has brought people across my path bringing gifts of smiles and hugs, or prayer support, or even monetary gifts to help with our side of the expenses. He has also encouraged my heart with verses of Scripture at just the right moment to prove that He is a living and active God and cares about me, personally.

Thanks, too, to my ever-patient family and friends, my surgeon and audiologists, and HearingJourney.com who have supported my progress in many different ways. I feel like a success story in progress, and it's certainly not my own doing.

Seward family Christmas silliness

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Hearing Progress and Getting Ready for 2nd Ear Activation

It's surprising how fast time flies, especially at holiday time when there are extra meals to prepare, gifts to buy, and errands to run. I haven't posted a blog now for weeks, but as I look forward to my 2nd activation on Wednesday, I'm thinking about the progress I've made in returning to the hearing world.

I still don't jump to answer the phone; maybe I'm just lazy, but sometimes it's still hard to understand the person on the other end of the line. There are many people who call our house, though, that I can understand and enjoy a conversation with, with only the occasional request for a repeat. That's a wonderful step ahead.

On Friday, I was the "guest lecturer" at my 3rd grader's classroom to talk for about 40 minutes on hearing and hearing loss, and cochlear implants, as part of their Science unit on sound. Did I "wow" 23 students with my technical knowledge and expertise, or was it just at the end when I stuck a spoon to the side of my head? In any case, I don't think I embarrassed my son too much, so all-in-all it felt like a successful event.

Yesterday at church, I worked both services in the baby nursery as part of a monthly rotation when I can get my "baby fix" on a regular basis. But I also worked last night for the Christmas program and played with talking toddlers. This was a step forward since normally babies just need rocking or bottles, but toddlers like interaction and vocabulary building. So, little Justin and Jeremy and I played with airplanes and Pooh Bears and my hearing impairment wasn't a problem with my cochlear implant working for me.

I've been working on my music appreciation by listening to Christmas music on my MP3 player, both orchestral and multi-layered music and with simpler acoustic arrangements that make it easier to hear and understand the pitches and lyrics. I've still got a ways to go before music sounds like what I remember, but my brain must be making adjustments again because my clarity is starting to get "mushy" and I can tell that I need a new mapping in my 1st speech processor. So, I'm glad that I'm already scheduled this week at the audiologist's office for my 2nd processor activation so I can get them both tweaked before Christmas vacation.

By the way, my daughter who is away at boarding school in Senegal, is coming home for Christmas on Thursday. I haven't had a face-to-face conversation with her since I got my implants, so I'm so excited to sit down and get caught up. We chat and email each other on-line, but I haven't had a real talk with her since before I went deaf in April. We're going down to Florida for most of the vacation to spend time with our families down there, siblings, cousins, grandparents, whom we've haven't seen in years, in some cases. It should be a nice time together and I'm so glad I'll be able to participate in it all!